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by InkWriter copywright held by Disney |
One in seven chance I've got the six year clock; that is what I can conclude. Etiology (unless put through expensive and rather useless in the end, genetic testing) unknown. Here's the kicker: Absolutely no current "modern medical" treatment reverses or even ameliorates the progress.
I am not feeling Tigger-ish about this. Not Eyore either. Because., I'm not AA Milne's baby. I'm my own baby.
I don't want to be morbid. People say that all the time when they are about to be morbid. "Morbid" meaning--doom and gloom. But morbidity in the true sense of the word is simply death. The morbidity rate for the 1 of the 7 etiologies is 100%. And it hits in one's 50's and one gets just enough years to do something. Some few things. The other 6 are no cake walk, either.
The morbidity rate for life is 100%, too, by the way. So I'm not so alone. Hence, these reflections.
Suspecting that one is more than less actively dying is a strange little space to inhabit. But not so strange, really. There's a stern pilgrim somewhere in me that says I'm being melodramatic. And I confess--I am a fan of a good romantic swoon. We love our tragedies because they acknowledge how tragic our real truth is: We don't get to stay around and that is a grand sorrow for the little narrator in our head.
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photo by plasticfetish |
Today my Jack is in the box. So I'm going to write from this place. This place we all are--turning our little organ-grinder handles, trying to get the notes to play attenuated one-by-one little tunes. I'm turning the crack as slowly as possible. I'm the John Cage of Jack In the Box. Don't jostle me, okay?
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